Tuesday, May 11, 2010
Relief At Last
Becca received an unexpected phone call today. Then she started to cry. She busted into my office, breathless. Her news caused me to go into shock for several minutes.
We have just secured a direct funding spot for Alanna from Thames Valley. The earliest we expected this news was September. Those of you who are paying privately for Intensive Behavioural Intervention (IBI) know this is the call you wait for. It's like being told you just won $50,000 in the lottery because that's how much it costs to pay for IBI annually, done properly. It will release us from a huge financial burden, assuming she can remain eligible for service until she goes to school. Presently, Alanna is two and a half, so we hope the earliest they could transition her to school would be in a year and a half. Hopefully she can remain eligible until she is five or six, unless she does so well she "recovers" (I use that term to mean she no longer tests in the autistic range in standard psychological testing.)
For those of you still on the waiting list - I expect you'll be happy for us, but also ticked that you're still on the list. We have been very blessed, only waiting nine months. Most people wait two to three years. While the regional system in Ontario works pretty well for us, it sucks if you live practically anywhere else, especially in Greater Toronto or in the North.
The irony is, if we'd waited on the public system, Alanna would just be seeing a developmental paediatrician now. She wouldn't even have a diagnosis yet.
The system isn't fair. But today, I can only look to the future with a renewed sense of hope about possibilities. I'll take that. I could use some hope. We all could.